:: Ms. Martine Pergent Bio : Ms. Martine Pergent ::

Ms. Martine Pergent

Martine Pergent has a wide experience in Patient representation and advocacy: first she volunteers as a co-founder of IRIS, the French Patient Organisation for Primary Immunodeficiency since 1998, then as a board member of IPOPI, the International Patient Organisation for Primary Immunodeficiencies, since 2000, then as IPOPI Vice Chair since 2012. As such, she is responsible for Africa and Middle East. 

She is particularly involved in :

-raising awareness on PID as rare conditions

-access to diagnosis and therapy, among them Immunoglobulins (hospital and home therapy), she set up a global list for Immunoglobulins,

-data collection, she carried out several surveys among Patients in France, among IPOPI National Member Organisations, high interest in registries and epidemiology,

-digital communications and e-health.

Personnally she works as a consultant in Communications, advising companies or institutions, among them health bodies (ie. French HTA agency, blood collector, hospitals, pharmaceutical companies).

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